Eloise’s first birthday party was on Sunday, and we had the best time! We honestly thought that Ouisie would be in the hospital instead of at her birthday party over the weekend after she came down with a low grade fever and cold; her oxygen saturation levels would get dangerously low (like 80%) and she would…
Must-Have: Medical Seat Belt Strap Cover
Y’all, if there’s one thing that I’ve ordered online the past month that is the most important package delivered, it’s this seat belt cover from Etsy. Forget Amazon, forget Target, forget j.crew… it’s this that will be worn the most! A fellow medically-needy mom in one of the Facebook groups I’m in shared this after purchasing…
Happy Birthday Eloise! + a letter to our girl
HAPPY FIRST BIRTHDAY ELOISE! Our sweet girl is a year old! This past year has been a blur, but an amazing blur, and I’m so happy to say that WE MADE IT. We made it to a year!! We’ve celebrated her birthday this entire week so far (and all the way to her birthday party next weekend,…
Eloise’s Newest Lovey: an unboxing
Last night, Eloise had another sleep study to determine the severity of her central apnea and to see if she’s finally “growing out” of her condition. Last night’s sleep study was her fourth one and while she’s become a real pro with them, they’re always stressful. She has around twenty probes coming from her head,…
